We started with a hearing specialist when Ethan was six months, and then Ethan started speech therapy a year later when he was a year and a half. From a very young age, Ethan had therapists in his life doing one on one work. Even though Diana or I was with him during these sessions, often we would not be active during this time as the therapist did a great job engaging him. When I was around, Ethan sometimes would want a hug when he was bored or need some redirection to stay focused, but more often than not, Ethan engaged and worked hard during these sessions.
Therapy was tough work for Ethan. After these sessions, he would be exhausted and often have a great nap after the time with his therapist was done. There were times that it was a struggle to get him working or get him ready in time for sessions scheduled first thing in the morning, but the effort was always worth it. While there were times when I would feel frustration because Ethan wasn't focusing during sessions, Diana would remind me that he was barely a toddler who is working hard.
The state government subsidizes Early Intervention. I submitted tax returns and other financial information, and they created a payment structure that they felt was appropriate for our income level. While the process of paying for Early Intervention feels overly complicated, the payment level that we paid for Ethan's therapy was very reasonable.
These two therapists were part of our life. They came to our house, Buffy greeted them enthusiastically, and they were with us for a long time. Ethan enjoyed working with them, and we were so happy with his progress. Additionally, they served as counselors for us, helping us understand what it meant to have a child with a hearing disability and how to navigate the support systems that would help him throughout his childhood.
When the pandemic hit, and my school and my children's schools went remote on 3/13/20, Ethan's therapy wasn't the first thing on my mind. With all of the stuff that we were juggling, having one less thing to think about at the time was nice. It was clear to us that if our therapists were not going to come to our house, we understood why. As days went on and it sunk in that Ethan couldn't have therapy, it made me really sad and frustrated at one more thing that we were losing because of this crisis.
I didn't have high expectations for success when Ethan's therapist emailed us about the possibility of remote therapy. This wasn't because of them; it was because of the situation. Ethan was a three-year-old who is doing therapy to help him hearing disability. How effective could this be over Zoom?
About a month later, we had our first remote session. It was so hard. Ethan didn't react very well to the therapist, it was hard to keep his attention, and it took a lot of work from me to keep him engaged. It felt weird and wrong to force him to interact with a screen when I've been spending so much energy trying to make sure that he didn't have too much screen time during the pandemic when it was a necessary evil.
During some of those early sessions, Diana and I would have to tag-team because it took so much of us to keep Ethan focused and engaged throughout the session. I'd be exhausted half-way through, and Diana would swoop in with energy and positivity and get him across the finish line.
The therapist worked so hard. They tried everything. They had music, videos, games, and toys. A lot of stuff they tried didn't work, but they always had something else to try.
No one gave up. The therapist didn't give up. Diana didn't give up, and I didn't give up.
Over time things started to get better. We better understood how to be assistant therapists, Ethan got used to interacting with his therapist through the iPad, and Ethan began getting excited once again to engage in the work.
There were times when it was frustrating that all we could do was therapy over the iPad, but more than that, we were grateful for the incredible hard work that the therapist did to make the time they spent with Ethan meaningful.
One of the therapists said that Ethan's work remotely was a success story among many children for whom remote therapy wasn't working well. I'm happy about this and sad knowing that even though Ethan had a level of success with remote therapy, he lost something, like so many, because remote therapy had to happen.
Sometimes the best we can do isn't enough, but for Ethan, the best the therapists and me and Diana did for Ethan made the seemingly impossible happen and created something positive for my special one.

